Summary of the symposium “Les paraules i les persones”

Video summary of the symposium “Les paraules i les persones (Words and people)”, held last 20th and 21st of June at sala de Graus de la Facultat de Lletres of the University of Girona.

Charity Gala for the Research of rare pediatric diseases

Yesterday, FECAMM attended the Charity Gala for the Research of rare paediatric diseases in Teatre Zorrila in Badalona.

I Iberoamerican Journeys on Hereditary Connective Tissue Disorders

You can now sign up for the First Conference for Hereditary Connective Tissue Disorders, organised by @conectiva_lat and @mundomarfan with the collaboration of @CentroCREER in Burgos, Spain, from the 27th to the 30th of September.

For more information and to sign up, visit Col·lectiva.lat's website. There are limited spots!

WORDS AND PEOPLE; First Symposium about ethics and disability

The event takes inspiration from the title of Michel Foucault’s work The Order of Things: An Archaeology of the Human Sciences (Words and Things: An Archaeology of the Human Sciences in French) and will focus on the word that “separates” us from the rest of the population.

Exhibition 'Rare Diseases' by Xavier Josa

Photography exhibitioin "Malalties Minoritàries" travels to Castellbisbal from the 8th to the 30th of June, 2022.

Let's help Ukraine

From FECAMM we want to show solidarity with the people of Ukraine, and formalize our rejection of the war, as well as offer help in all possible ways to the minority disease organizations in the country.

Undiagnosed Disease Day

Rare and undiagnosed diseases are usually pathologies that, individually, affect a not very large number of people, but as a whole the "thing" changes.

XXVI annual meeting of the catalan society of neurology

The next 2 to 5 May will be held at the WTC in Barcelona the XXVI annual meeting of the Catalan society of neurology.

Ask the expert

ERKNet, the European Reference Network for Rare Kidney Diseases, wants to offer the exceptional expertise of its internationally renowned specialists to European patients affected by rare kidney diseases and their families.

Helping is fun

This Sunday, April 24 at 12:30 pm at SILK La moraleja, a new charity party “Helping is fun”.