Overview of Orphan Drug Designation in the EU
The European Medicines Agency (EMA) plays a central role in facilitating the development and authorisation ...
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The European Medicines Agency (EMA) plays a central role in facilitating the development and authorisation ...
In recent years, significant advances have been made in the field of rare diseases (RDs). However, there is a large number of RDs without specific treatment and half of these treatments have public funding in Spain.
Aquest passat 28 de febrer, en motiu del Dia Mundial de les Malalties Minoritàries, s’ha celebrat l’acte d’inauguració de la Patient73 GameJam.
New disease could provide insights into how the cell’s recycling system contributes to a healthy brain.
El proper 2 de març se celebra una jornada organitzada per l’hospital Vall d’Hebron amb la presència de diversos experts en malalties minoritàries.
Last Thursday, February 16, a new edition of the AMICS uab Dinners was held, with the presentation of Dr. José Hernández-Rodríguez, consultant physician of the Autoimmune Diseases Service of the Hospital Clínic of Barcelona and Coordinator of the Clinical program of Rare Diseases.
El proper dijous 16 de febrer l’entitat AmicsUAB organitza un nou sopar tertúlia centrat en la situació actual de les Malalties Minoritàries amb la ponència del Dr. José Hernández-Rodríguez, metge consultor del Servei de Malalties Autoimmunes de l’Hospital Clínic de Barcelona.
The study, conducted by researchers from the Department of Social Policy and Intervention at the University of Oxford and sought to empirically assess the effects of outsourcing health services to for-profit providers in the United Kingdom, concludes that this privatization can lead to a worsening of patient care.
After the presentation of the Patient73 project Radio Rubí has published an article highlighting its strengths.
The project has been very well received and this encourages us to continue working to improve the platform and reach everyone!
The movement poses different demands to local and regional administrations to generate opportunities for independent living for people with disabilities and people with mental disorders in the Garraf region.
The presentation served to show the current status of the platform and its strengths, as well as the next steps to be taken in the future.
The 13th edition of the World Orphan Drug Congress, an award-winning event that has become the world's largest meeting on orphan drugs and rare diseases, will take place at the Hotel Melià Sitges (Barcelona) from November 14 to 17.
Next Friday, November 11 at 19:30h we will present online the Patient73Hub project.
The PATIENT73 team attends the 8th edition of the reference congress on Artificial Intelligence and Big Data: the
AI & Big Data Congress.
El proper 26 d'octubre es celebren les XXXIV Jornades Tècniques ESTIMULACIÓ CEREBRAL NO INVASIVA;´LHORA DE LA CLÍNICA a l'Institut de Salut Cerebral i Neurorehabilitació Guttmann Barcelona. Inscripcions a partir del 23 de setembre.
The event, focused on the current situation of research on rare diseases in Spain, will take place on November 4 from 10 a.m. to 12:30 p.m. at Unidad Editorial's headquarters in Madrid.
On Wednesday 21st of December 2022, we invite you to participate in the training conference for Idiopathic Pulmonary Fibrosis (IPF) aimed at healthcare workers, especially pulmonologists and workers at primary care centres (CAP in Catalan) and primary care emergency centres (CUAP in Catalan).
El proper dissabte 24 de setembre a les 11:00h se celebra el Dia Internacional de la Hipercolesterolèmia Familiar a l'auditori de l'Hospital Universitari Sant Joan (Reus)
Researchers are trying to pinpoint if TRAF7 patients have an increased risk of certain cancers such as meningiomas, mesotheliomas, intraneural perineurinomas or adenomatoid tumours of the genital tract.
Assistim al Congrés sobre el canvi de model assistencial que es celebra el 28 i 29 de setembre a Barcelona.
